In this toolkit, the terms “person” or “individual living with dementia” are prioritized over “patient.” The purpose of these word choices is to remind readers that individuals with dementia and their families can have full lives without attaching stigma and misperceptions.
The terms “family,” “family member,” “friend,” and “caregiver” are used interchangeably to mean any relative, partner, friend, or neighbor who has a significant relationship in caring for the person experiencing or living with symptoms of dementia.
Of note, the term “care partner” has recently been proposed to help improve the way people who provide care are viewed and to convey that those individuals are integral to the care of persons living with dementia who should have agency in their life as much as possible. However, the term “partner” may trigger other associations for many individuals. Therefore, the aforementioned terms will be used throughout this publication.
The term “knowledgeable informant” refers to instances in which a family member or friend is able to offer useful information to the primary care team to inform the clinical history.
The term “mild cognitive impairment” refers to noticeable changes in memory and thinking that go beyond normal cognitive aging but are not as severe as dementia. Symptoms may include forgetfulness, difficulty finding words, trouble with complex tasks, and challenges in making decisions. However, people can usually perform activities of daily living and live independently. Mild cognitive impairment may be a precursor to dementia, but not all individuals with mild cognitive impairment will progress to dementia.
The term “dementia” is an umbrella term that refers to a wide range of medical conditions caused by abnormal brain changes, with Alzheimer’s disease being the most common cause of dementia (Alzheimer’s Association, 2024). These changes can cause a decline in thinking and problem-solving skills (i.e., cognitive function) sufficient to interfere with daily activities. The changes can also affect behavior, feelings and emotions, and relationships.